Events in November 2020
When: Thursday 5 November, 2020
Time: 11:00am EST; 8:00am PST; 4:00pm GMT; 5:00pm CST.
Duration: 30 minutes.
The statistics of rare disease are challenging: there are over 7,000 rare diseases, and around one in 17 people will develop a rare disease. This represents a huge unmet need, as only about 5% of the known rare diseases have a licensed treatment.
When: Tuesday, 17 November 2020
Time: 11:00am GMT; 12:00pm CET.
Duration: 60 minutes.
Finding the right information in a sea of structured and unstructured data sources is a real challenge. Important contextual information is often missed and there is insufficient time to spend on strategy development and decision making.